Five ways Tracey secured her son’s best NDIS package

The ability to secure an NDIS package that meets the needs and goals of a loved one can be a challenge. Tracey, who cares for her son, Finn, gives her five tips on how she got what she needed for her son.

“Finn was officially diagnosed with Mowat-Wilson Syndrome when he was 3, in December 2016. Nine months later he was diagnosed with severe autism. At the time, they basically told me what I already knew, aside from the fact I did not know what Mowat-Wilson Syndrome was, I knew that Finn had something that was life-long, that was my gut feeling.

Research, research, research

From there I immersed myself in research. Learning about what I was dealing with, and what was best for my son. Along the way, I came across The Benevolent Society. And I also began to understand what I could receive from the NDIS.

Define your plan

With Finn being so young and me being so new to this, it was not easy to define the goals I wanted for him. Also, getting the right diagnosis was something we spent money on to demonstrate that Finn had certain needs. From there, we could expand the goals we set for him.

Keep seeking answers

The assessments really helped us understand exactly what Finn needed, and what we should be asking for. It was crucial to get the best reports that we could since this made defining the goals for Finn possible. And it made us ask for more than we first thought.

Discuss your needs with your provider

 The one thing that stands out for me, working with The Benevolent Society, is the empowerment that I now have. This has helped me to be the best advocate for Finn.

Keep going and never give up

It’s been a journey. It’s taken over three years to reach the level of supports that we thought may have a real impact on Finn. And it’s with this early intervention that we can see a real difference to my awesome little boy – my Finn."

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